I am shivering as I write this due to one of the, thankfully infrequent, waves of nausea that has overcome me for a minute. But it goes away. The frustrating thing is, as I learned this past Thursday, it didn't have to be this way.
Thursday I went in for my CT Scan to see how my cancer was responding to chemo. A resident was brought in to compare this scan with the previous to see if the cancer had spread. He stated everywhere looked good, no new growth. He pointed out that there were two lesions on my lung, they were noted there before, hadn't grown, and didn't show metabolic activity so they were probably just cysts. So that's all good news, except I distinctly recall one cyst on my lung not two. I didn't really follow up on that because I was totally shocked by the next revelation.
If you have read my blog you recall I had a biopsy done on by bladder in December 2014. That biopsy came back negative for cancer; just "cell material and fibrin". Based on this cancer was off the table and that area of my bladder was labeled "Chronic Inflammation Disease". I kept going back to my doctor with the same symptoms and finally, 5 months after the first biopsy he decide to do another. Both biopsies my physician noted a pinkish area with a white (probably stone material) in the middle. The first biopsy had around a 2mm specimen and the second over 1.5 X 3 CM specimen, much larger the second time.
The second biopsy came back with Muscle Invading TCC Hi Grade. A dangerous situation. I had always assumed the physician just didn't get a large enough sample the first time. Obviously there was cancer there so how did he miss is it when collecting the specimen?
Well, he didn't miss it. I had the original slides from the first biopsy sent to UAB Hospital Lab to re-examine those slides. The UAB lab report, on the slides that Mobile Infirmary lab said was clear of cancer, stated that "Most of the lesions represent NON-INVASIVE, high-grade papillary urothelial carcinoma". Basically the slides in December showed a dangerous cancer caught early that had not yet invaded the muscle layer of the bladder. Papillary cancers look like "Pimples" growing inward from the bladder wall. Basically, pink with a white head.
All literature says treatment must begin within 3 months of diagnoses or risk of death is much greater. With a non-invasive diagnoses in December, I could have had that area resected with margins via a procedure known as a TUR and then BCG treatments. I would not have had to have my bladder removed, my prostate removed, and a urinary diversion performed and this awful Chemo. Treatment with non-invasive cancer has a 96% 5-year survival rate. Treatment with Muscle Invasive like I have now, depending on final bladder pathology, the 5-year survival is anywhere from 46% to 69%.
That's the difference 5 months delay in treatment makes.
Anyway, that's the shocker for me but I realize I cannot focus on that because as it is I have to deal with the reality of where I am at and not where I could have been. I'll pick my head back up and keep fighting this thing.
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